ALS Awareness: Last Word

Strip my bones, make sinews scream As muscles waste away Erode my independence, day by day Legs hang useless, arms grow weak Next, rip away my strength to speak Diaphragm slows, a struggle for breath.  ...I will lose, you'll have my death But until then, I won't give in.          I'll give... Continue Reading →


ALS Awareness Month: What Would You Give?

Do me a favour, would you? Settle in somewhere comfortable, and set an alarm for, oh, five minutes or so. Now, for that five minutes, try not to move. Not your arms, legs, head, mouth, nothing. Not at all, only your eyes. Phone buzzing? Can't answer it. Itch? Can't scratch it. Mosquito landing and feasting... Continue Reading →

ALS Awareness: death stats

One thousand Canadians doesn't seem a lot, really. After all, 48,000 people will die from heart disease, and a staggering 78,800 will succumb to cancer in the same time frame. * But here's the difference. With cancer and heart disease, there are survival statistics. Those diseases have a chance to be managed, treated, forced into... Continue Reading →

ALS Awareness: One Year In

Today marks the anniversaries of tragedy on large and small scales. D-Day, 2500 Allied lives lost. Shawnadithit, the last known Beothuk, died of tuberculosis. Certainly puts the day in perspective for me, because it's one year ago today for my personal "D-Day", my ALS diagnosis. Yes, it was a terrible day, I can hardly bring... Continue Reading →

June is ALS Awareness Month: Quiz!

(Photo courtesy BC ALS Society, the BC Legislature lit up purple for ALS Awareness Month) How can it be, you ask? How can both May AND June be ALS Awareness Month? Our American friends tackle ALS in May, and here in Canada, June is ALS Awareness Month. And frankly, a disease this insidious needs all... Continue Reading →

ALS Awareness Month: Mindfulness

Aware of the tiger that feeds relentlessly mercilessly stripping away muscle and sinew on his own timeline, indefatigable until gradually the bones are picked clean and his prey, completely consumed Aware of the warmth of the late spring sun clouds drifting across the bluest of skies waves painting the shoreline in broad, lazy strokes yellow... Continue Reading →

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