“Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow, and eventually breathe.
ALS is not contagious. There are no effective treatments for ALS and no cure. Approximately 80 per cent of people with ALS die within two to five years of being diagnosed.”
In the fall of 2015, I began to have trouble walking. Putting it down to aging, and being out of shape, I didn’t see a doctor until the following February when the weakness in my thighs began to really be troublesome.
At first I was loosely diagnosed with a spinal stenosis, then polymyositis, then finally, the ALS sentence was handed down in June 2016.
Although a fairly quick diagnosis, it was difficult to pin down because I had atypical presentation. I went through extensive testing, and it was ultimately a muscle biopsy that sealed my fate. Spontaneous limb onset ALS.
From that day, I began blogging about my journey. At first, I felt as though I was dying from ALS, but I realize I’ve learned to live with it.